If you are over 18, living in the UK, with a confirmed diagnosis of MS then you can help us increase our understanding of living with MS. Join the study by completing a series of simple questionnaires and returning regularly to update your experiences. Use the website to keep track of your MS over time.
My MS My Needs is one of the largest surveys of people affected by MS in the UK. It was first carried out in 2013, and was updated in 2016.
In 2016 the survey was completed by over 11,000 people with MS across the UK. The results were the driving force behind a number of the UK MS Society campaigns, including End the Care Crisis, MS Enough, and Treat me Right.
If you want to complete the survey here and aren't a member of the UK MS Register, then please sign up using the sign up form on the left. We will then ask for some identifying information, then some details about your MS, next the My MS My Needs survey will be on your 'Hub' page. The sign up process should take less than 8 minutes to complete and My MS My Needs less than 30 minutes.
There are a number of very good reasons to sign up to the Register, not only to take part in surveys such as this, but to potentially be informed about clinical trials or other research that is relevant to you. Get feedback on changes to your health over time and to make a massive contribution to MS Research in the UK.
The UK MS Register collects a large amount of data from as many relevant sources as possible. The security and confidentiality of this data is of the highest importance to us and therefore we ensure that we use the highest levels of encryption and security throughout its collection, storage and use.
All data that researchers have access to is anonymised and nothing identifiable is ever released.
You can leave the Register at any point.
Your contribution will lead to a better understanding of living with MS and the knowledge we gain from this study will fuel campaigns for fair, relevant policy and improved healthcare for people living with MS in the UK.
Everyone is different, and everyone experiences MS in a different way.
That’s why your story is so important to us.