My MS My Needs is the largest survey of people with MS in the UK. It is run by the MS Society in partnership with the UK MS Register Over 10,000 people responded to the first survey in 2013, revealing a postcode lottery of treatment and care. Since then, the survey has run every three years. Alongside the friends and family survey it will help us understand the priorities of the wider MS community.
If you want to complete the survey and aren't a member of the UK MS Register, please sign up now. We will ask for some identifying information, some details about your MS, then the My MS My Needs survey will be on your 'Hub' page. The sign-up process should take around 5 minutes to complete. Our secure, reliable platform which has enabled people with MS to monitor their disease, communicate with clinicians and directly contribute to research.
If you want to complete the survey here and aren't a member of the UK MS Register, then please sign up using the sign up form on the left. We will then ask for some identifying information, then some details about your MS, next the My MS My Needs survey will be on your 'Hub' page. The sign up process should take less than 8 minutes to complete and My MS My Needs less than 30 minutes.
There are a number of very good reasons to sign up to the Register, not only to take part in surveys such as this, but to potentially be informed about clinical trials or other research that is relevant to you. Get feedback on changes to your health over time and to make a massive contribution to MS Research in the UK.
You can leave the Register at any point.
Your contribution will lead to a better understanding of living with MS and the knowledge we gain from this study will fuel campaigns for fair, relevant policy and improved healthcare for people living with MS in the UK.